CDCN Monthly Newsletter - August 31, 2016
Accelerating Research & Treatment for Castleman Disease
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August 2016
Buy Tickets for Quest for a Cure!
'Quest for
a Cure' Gala for Castleman disease - Friday, November 4 at 7:30PM at University of Pennsylvania's Jordan Medical Education Center in Philadelphia, PA

Last year's event was a huge success with over 200 physicians, patients, loved ones, and Philadelphia-community members, and we hope to make this year's even better! Open bar, exclusive auction items, great food, and special guests will highlight the evening, which is dedicated to celebrating our success and accelerating progress in the future. Buy your tickets now and check out the website for more information about sponsorship opportunities and donating at 

Register for the International Patient/Loved One Summit! Apply for one of 28 Travel Grants to cover up to $500!
'Beating Castleman Disease, Together' - November 4-5 at University of Pennsylvania's Jordan Medical Education Center in Philadelphia, PA 

The CDCN will host its 3rd annual "Beating Castleman’s Together" Patient/Loved Ones Summit. Patients, loved ones, physicians, and researchers will spend the day on Friday, November 4 connecting with one another and learning about Castleman's, up-to-date research, and ways to join the fight to advance research and treatments. There will also be a fun, community-building event on November 5. This year, we have 28 travel grants worth up to $500 each to assist with flight and hotel costs! Click here to sign up for the event and to apply for the link to apply for a travel grant!
CDCN and Penn Orphan Disease Center giving out $43,000 for CD Research

The CDCN is partnering with the University of Pennsylvania Orphan Disease Center to provide a $43,000 grant to search for somatic mutations in Castleman disease that could be responsible for the cytokine storm and lymphoproliferation. Proposals would first seek to identify somatic mutations from patient samples and second would seek to validate any observed somatic mutations through functional studies. We expect the investigator to provide some of the samples and to contact the CDCN to help identify additional samples. The Letter of Intent is due 9/16/16. More information is available on University of Pennsylvania Orphan Disease Center website here
Check out all of the studies in the CDCN's complete Research Pipeline
Spotlight on Dr. Frits van Rhee, MD, PhD, MRCP (UK), FRCPath: 
Dr. van Rhee is one of the most important members in our fight against Castleman disease! He treats the largest number of HHV-8-negative multicentric Castleman disease patients in the world, he helped to found the CDCN with David Fajgenbaum and currently serves on its Scientific Advisory Board, and he leads the “UAMS Castleman’s Research Laboratory." He is a Professor of Medicine, Director of Developmental and Translational Medicine with the Myeloma Institute at the University of Arkansas. He is an Internist/Medical Oncologist who specializes in Castleman disease, Myeloma, and Stem Cell Transplantation. Contact if you're interested in learning about how to arrange a visit with Dr. van Rhee. She can provide all the information you need
Warrior Story: Victoria's journey continues -- Patient with rare disease forges ahead 
Victoria traveled from Texas to Philadelphia to enroll in a UPenn/CDCN study and to meet with Dr. David Fajgenbaum as well as to the NIH in Bethesda, MD to see Dr. Thomas Uldrick. Click here to read about Vickie's Journey, which was featured in the Corsicana Daily Sun! 

We have made incredible progress, but have life saving work that needs funding. With your support we can beat Castleman Disease! Click here to donate! 

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