CDCN Monthly Newsletter - February 10, 2015
Accelerating Research & Treatment for Castleman Disease
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     THE ACCELERATOR: CDCN's Newsletter

We're executing our International Research Agenda with funding from Castleman Warriors around the globe!

The Castleman Disease Collaborative Network (CDCN) developed an International Research Agenda in collaboration with 200+ physicians/researchers worldwide and our 23-member Scientific Advisory Board. Our top three research priorities, which urgently need funding, are:
  • Quantifying 1,200+ blood proteins to better understand what causes the multiple organ failure that can be seen in Castleman disease (CD). This study has the potential to improve diagnosis and treatment of CD. Estimated cost for pilot = $30,000

  • Deep sequencing to uncover potential triggers and etiologies of CD. Estimated cost = $70,000

  • Investigating the inflammatory pathways activated in CD, which may identify the pathological CD cells to improve diagnosis and treatment of CD! Estimated cost = $50,000

As we boldly move forward in the search for a cure for Castleman disease, we want to thank those of you that have already joined the fight and encourage those looking to join our fight to donate today.
Castleman Warrior of the Month - Teresa Nobleza 
Teresa, who has joined the CDCN from the Philippines, shared with us that her life with CD has been very challenging since her diagnosis in 2009, but she is thankful for the virtues of patience and perseverance that she has developed.  Teresa hopes to inspire other patients who are also fighting. Check out our interview with her here.
Are you ready to join the fight? It’s easy to become a Castleman Warrior! Please click here to learn more.

2014 “Accelerating Research for CD” Meeting A Huge Success!

For the third year in a row, the CDCN organized the largest-ever meeting of physicians and researchers dedicated to advancing CD research. Over 50 global experts aligned on research priorities and worked together to finalize plans for our global patient registry, which we will launch in 2015. Learn more here.

Major Takeaway From Summit: “Castleman’s Messed With The Wrong People!”

Participants of the CDCN’s first-ever patient summit shared that they feel more informed and motivated to take down Castleman disease than ever before! The 29 attendees connected in San Francisco and committed to doing the following:

  1. Becoming "Castleman Warriors" to raise funds and awareness for research. As Carl (a Castleman Disease patient/warrior) reminded us, now is the time to ask for support, especially since we have research studies waiting to be launched. Please click here to sign up.

  2. Posting a photo in the #WarriorStance and tagging the CDCN on Facebook!

  3. Being there for other CD patients through our patient forum and summits.

Dr. David Fajgenbaum was Named to the '2015 30 Under 30 in Healthcare' List by Forbes Magazine

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Read more about this incredible honor that Dr. Fajgenbaum believes is a testament to the dedication of our Leadership Team, Scientific Advisory Board, Board of Directors, volunteers, and donors. “I could not be more grateful for all that so many have done to get CD research to where it is today, but we still have work to do,” Fajgenbaum said. We all hope that this will help us to raise more awareness about the CDCN as well as much-needed funding to accomplish our mission. 

Copyright © 2015 Castleman Disease Collaborative Network - Castleman's Awareness & Research Effort, All rights reserved.

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