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The GSNV Practical Wellness Series:

October 6th-25th 2021


JUST 1 WEEK TO GO 
Registrations are still open to take part in the workshops presented as part of the GSNV October Practical Wellness series.
 

As 2021 proves to be an extension of the discord and isolation we experienced in 2020, we at the GSNV understand the need for “filling your cup” to support yourself and the others in your lives.

We miss connecting with you in person and wish to say thank you for your continued support of those living with rare and undiagnosed genetic conditions.

The success of our ‘5 Days of Wellness Week’ last October has had us planning for this years event to build your practical wellness skills as individuals and community leaders.  We are presenting 4 weeks of workshops, one per week in an online format.

The continued sharing of resources is important to keep the conversations going about Support, so each event will be concluded with a take home resource.

To assist you in completing the registration form please find details of each event below:

PEER SUPPORT TRAINING presented by Cystic Fibrosis Community Care October 6th 10:00am-12:00pm 

ACCIDENTAL COUNSELLOR WORKSHOP October 13th & 15Th 10:00am -1:30pm presented by Suicide Programs/Calm Conversations (FULL-this option is to register your interest to join the waiting list)

RIGHT TO SAFETY WORKSHOP presented by Women with Disabilities Victoria  October 19th 10:00am-1:00pm

DEMYSTIFYING LOSS & GRIEF WORKSHOP presented by Very Special Kids October 25th 10:00am – 12:00pm

Register here for the Practical Wellness Series
Cystic Fibrosis Community Care (CFCC) is once again supporting the supporters to bring you Peer Support training.

A highly recommended training to understand effective peer support which can help reduce feelings of isolation, anxiety and stress, building confidence and self-management within your community.

Cindy will discuss what is peer support and rights and responsibilities, and things to consider when implementing a peer support program. 
Cindy Van Rooy is the Programs and Support Services Manager for Victoria at Cystic Fibrosis Community Care. CFCC is the peak not-for-profit community organisation working across Victoria with, and for, people living with cystic fibrosis (CF), their families and carers. CFCC provides advocacy, support and information services to people living with CF and their families.

She has been involved in the coordination of CFCC’s peer support program for over 6 years as it has developed and evolved to meet the changing needs of the community and new technologies. CFCC’s peer support program includes a mix of one-on-one peer support, an online Facebook group, and group peer support activities that are run face-to-face (restrictions permitting) and online.

The GSNV is excited to bring the Accidental Counsellor workshop to our event this year. Many support groups and peer support liaison's find themselves in situations where they are  talking to someone who is having a difficult time, having relationship issues, not coping with life or feeling helpless. This workshop will bring you the skills to respond in a helpful and appropriate way. This training is delivered by a qualified counsellor with many years experience working on a crisis line.

Melanie Schroder,Calm Consulting Director has 25 years’ experience working across government, education, and community sector with a focus on mental health, suicide intervention / prevention and conflict resolution /peace building.

She has post graduate qualifications in counselling as well as mediation / conflict resolution and currently works with many universities and associations as an educator, counsellor, trainer, coach, and assessor.

Places are FULL but register for the waiting list

 

Women with Disabilities Victoria has partnered with the Genetic Support Network Victoria (GSNV) to offer one half-day training session to employees, network members and the related community. The workshops will focus on introducing participants to gender and disability inequality, violence against women and primary prevention of violence against women with disabilities.

The training will draw from the Our Watch Change the Story framework for violence prevention as well as the Prevention Violence against Women and Family Violence Capability Framework.

The session will follow WDV’s standard cofacilitation model.

Module 1: Introduction to Prevention of Violence against Women with Disabilities

Module 2: Prevention in Action


Olivia Franklin is a passionate feminist and advocate for women's rights, health and safety. She has been working for five years in the women's rights space with roles spanning family violence response, international development, gender and disability advocacy and the prevention of violence against women.

Tess Karambelas is a social worker who has worked for Women with Disabilities Victoria for 3 years. She has a lived experience of Cerebral Palsy which she uses to inform her training to deliver PVAW gender and disability intersectionality training to disability and social service organisations.

 

For the first time the GSNV has collaborated with Very Special Kids (VSK), a Victorian based children’s charity that helps approximately 850 families across the State who have a child with a life-threatening condition. They provide ongoing support from diagnosis all the way through to recovery or bereavement. 

Loss and bereavement can take many forms, not only linked to life threatening conditions, so it is fitting to bring you this workshop by the experienced team at VSK.

This workshop will explore:

  • Defining grief, trauma, and primary and secondary losses
  • Common misunderstandings
  • Contemporary approaches
  • Practical tips to support someone experiencing all types of grief and loss

Places are limited for this FREE event.

 
Lucinda Fraser is a family support practitioner at Very Special Kids, covering the Loddon Mallee region. She has previously worked in the areas of trauma, grief, loss, suicide prevention and postvention across paediatric and adult hospitals and community settings.

As a social worker, she is drawn to areas such as palliative care that are often stigmatised and enjoys the work that comes with bearing witness to vulnerability and allowing people to be heard whilst grieving.

 

 

 
Register here for the Practical Wellness Series

We are looking for your assistance to complete the GUARD Health Professionals register. This will be a valuable resource for the genetic and rare disease community, both for individuals with rare conditions and for health professionals.

We are pleased to inform you that the service will be hosted by the Genetic, Undiagnosed and Rare Disease Collaborative Australia (GUARD) https://guard.org.au/ which was formed with state based organisations representing the rare and genetic disease community, including GaRDN, Genetic Alliance Australia, Syndromes Without a Name Australia and Genetic Support Network Victoria.

If you or someone you know wishes to participate in the Researcher and Health Professionals register, please fill in this survey: 

Take the survey
PATIENT PATHWAYS
PROGRAM AVAILABLE NOW 


People living with a genetic, undiagnosed or rare condition can access the telehealth nurse through the  GSNV website  or the Syndromes Without a Name (SWAN) website and seek an appointment and further case management with a telehealth nurse. Patients and families will also be linked with the appropriate support organisation through this process.
The aim of our Pilot is assist genetic, undiagnosed and rare disease patients and families to access the health system and all that is available to them, including clinical trials. 
 

 
PATIENT PATHWAYS CONTACT FORM
What's on at the Genetic Support Network of Victoria

Please email info@gsnv.org.au if you have any questions, concerns or queries 
Want to become a member of the GSNV?
Membership allows you to book rooms at RCH and MCRI, access the support group portal on the Genetic Link, access GSNV volunteers, apply for our small grants scheme and more! MEMBERSHIP IS NOW FREE
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Genetic Support Network of Victoria · Royal Children's Hospital · Murdoch Childrens Research Institute 50 Flemington Road · Parkville, VIC 3052 · Australia

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