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Seasons Greetings!
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From the team

Dear GSNV community,

Hello all everyone welcome to the last edition for 2015 of the GSNV E-News Bulletin Bits and Pieces.  The year has passed with many triumphs and indeed many challenges, impacting all communities all over the world.  At this time especially it is important to reflect on the things most important to us, and the ones closest to us.  The holidays are also particularly challenging for those who have recently lost loved ones, and especially through acts of senseless violence.
 
After 8 months in Italy I write this message with a fresh pair of eyes and greater appreciation of the fragile state of our world.  I’ve seen the impact of the Syrian refuge crisis and terror attacks up close and these holidays will reflect on how that has made me feel and what I need to do to heal.
 
On a brighter note, it’s wonderful to experience the holidays in winter and to see the beauty of Christmas in the northern hemisphere.  I have to say it’s very special!  From the lights, to ice skating rinks in the centre of towns, homemade wares and wonderful foods, it’s a glorious time of year.  The celebration of Christmas is simpler here. It’s definitely less commercial, and much closer to the true meaning of the holiday.  Being far from family and friends at this time is not easy, but at the same time I look forward to celebrating the holidays with far less ‘to do’ and having some time for personal reflection.
 
To all the GSNV community, our friends and colleagues, the GSNV Committee and staff wish you all a wonderful end of year and very tranquil entry into the New Year ahead.  We wish you good health, joy and safety and look forward to delivering quality services once again in 2016. 

Louisa Di Pietro
Group Leader GSNV


Show us your SUPPORT!
The Genetic Support Network of Victoria (GSNV) invites its community to get involved and raise awareness for genetic and rare disease support, by showcasing support group photos.
 
The GSNV will be facilitating our annual Genetic Support Awareness Week (GSAW) from 22nd-29th February 2016. GSAW strives to raise awareness and support people affected by genetic and rare conditions, through activities which are held throughout the week. We recognise that support is an important component in understanding and managing genetic and rare conditions, however we realise that many people do not know support groups exist or do not understand the hard work that goes in to running a successful support group.
 
As part of GSAW 2016, we are seeking to promote the vital work conducted by support groups and the contribution they make to their community.  The quite achievers, heroes and heroines behind the scenes supporting the genetics and rare disease community are often unseen. We want to tell you who they are, what groups they represent and how they achieve very important things like connecting people with shared life experiences. These photos can be of the people working in the support group office, support group leaders and volunteers, support staff or from family and information days and everything in between.  
 
The aims of the “Show us your SUPPORT!” campaign are to give the public a visual insight into the genetic and rare diseases support groups around Australia and to raise awareness of the importance of support services in genetic and rare disease health. Over Genetic Support Awareness Week, the GSNV will be using social media as a wide reaching platform to showcase these images.
 
The GSNV invites you to “Show us your SUPPORT!” and submit a photo that represents your experience, your support group or those who are making a valuable contribution to support activities.
 
How to submit your photo:
Please submit your photo along with a caption, including a brief description of how your support group started and your mission and/or vision. You can submit your entries via email to info@gsnv.org.au with the subject line “Show us your SUPPORT!”. By submitting a photo you are consenting to the GSNV reproducing the photo and caption during GSAW on our website, Facebook, Twitter and electronic communications.
 
Copyright © 2019 Genetic Support Network of Victoria, All rights reserved.


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