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This news bulletin is brought to you by the International Children's Palliative Care Network. Keeping you up to date and informed on issues related to children's palliative care from around the globe.

Acknowledging the role of nurses in children's palliative care

Monday 12 May is International Nurses Day. Nurses form the backbone of children's palliative care services in many countries and are always there to share the ups and downs of the journey with the children they care for and their families. An American nurse practitioner, Christine Bell, sums up the role of a nurse beautifully when she says: Our job as nurses is to cushion the sorrow and celebrate the joy every day, while we are 'just doing our jobs'.

ICPCN would like to take this opportunity to honour and acknowledge all those wonderful nurses who work in children's palliative care and thank them for their compassion, expertise and love. 

ehospice in line for top charity award

ICPCN is proud to be a part of ehospice which has been shortlisted for the prestigious Charity Awards, recognising and rewarding those organisations doing exceptional work in all areas of charitable activity. The awards are an annual programme held in the UK which celebrate and highlight best practice across the voluntary sector.

ehospice has been shortlisted in the ‘Healthcare and Medical Research’ category, and will be assessed on 10 Hallmarks of Excellence.

Watch a short promotional video on ehospice

The winners of the awards will be announced at a ceremony in London on 12 June.
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There is still time to register for the Touching Rainbows conference in Hungary 

The Light of My Eyes Foundation in Hungary is organizing the "Touching Rainbows” 3rd International Children Hospice Congress on 15-16th May in Zsolnay Quarter, Pécs. You can still register for the conference.

The programme includes both international and local speakers covering a range of subjects related to the field of children's palliative care. Speakers at the conference include Dr Satbir Jassal from Rainbows Children's Hospice in the UK and theologist Dr. Gusztáv Kovács.  
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Butterfly Children's Hospices in China seek a Director of Operations 

Butterfly Children’s Hospices is expanding rapidly and seek a senior manager and leader living and working in China to support operations and developments in the country.

Accountable to the CEO the Director of Operations ensures the smooth running and development of the operational services in BCH locations in China and is responsible for achieving those areas of the business plan and budgets relating to service provision in China.
 
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An intolerable burden of care

A recent article in the Sunday Tribune, a South African weekly newspaper, takes a deeper look at the unbearable burden of care that led a South African mother living in London to kill her three children suffering with SMA and try to kill herself. The story highlights most poignantly the need for more and better palliative care services around the world. 
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