Every Child Deserves a Medical Home
What does it mean to have a medical home for your child? It is a partnership between your family and your child’s primary care doctor, working as a team with specialists and community support. Your
child and family are the center of this care, and the medical home is built around you.
Watch: Building Family Professional Partnerships webinar
Presented by Dorelia Rivera, the mother of a child with special healthcare needs who talks about family-centered care and partnering with providers.
A medical home means your child's care is
- in your community and insurance network
- someone to call for help any time
- see the same doctors who know you
- your doctors talk to each other
- well visits and appointments when your child is sick
- referrals to specialists and community resources when needed
- working with other healthcare providers
- using community, school, and support resources as needed
- concern for your child and family
- flexible and helpful
- respect for your culture and language
- translation and multi-language materials available
- understanding that you and your family are the primary caregivers for your child
- responsibility for decision making is shared
How can I build a medical home for my child?
You need to be an active partner in your child's healthcare. At Specialized Care for Children, we believe a big part of meeting the needs of children is meeting the needs of their families and caregivers. That's why the care we coordinate is family centered -- we focus on partnering with you, listening to your needs and preferences, and then helping you to tailor a plan for moving forward in a coordinated, confident way.
Here are a few things you can do to help your providers work with you to coordinate your child's care:
- Bring a care notebook to all appointments, therapy visits, meetings, and when you travel. A care notebook is one way to be sure that care is comprehensive, coordinated, and family-centered. Family Voices offers several options for creating your own care notebook.
- Take a list of questions with you to appointments. You may not remember all of the questions you want to ask while the doctor is with you, so write them down (maybe in your care notebook). An online question builder can help you create your list of questions.
- Keep track of appointments and care. Try to get to appointments on time. If you are going to miss an appointment, call the doctor's office as soon as possible to reschedule.
Medical Home Resources
Help with questions to ask your doctor
Care notebook options
Arc of Illinois Family to Family health information
Medical Home Portal
(hosted by University of Utah)
National Center for Medical Home Implementation