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EURADIA Newsletter

Winter 2014
CONTENTS

NEWS FROM EURADIA
EURADIA COLLABORATION
NEWS FROM EURADIA MEMBERS
NEWS FROM THE EU INSTITUTIONS
EUROPEAN PARLIAMENTARY QUESTIONS
REPORTS AND RESOURCES
RESEARCH FUNDING

RESEARCH PARTNERING
EVENTS
NEWS FROM EURADIA

World Diabetes Day November 14 2014: Healthy Living and Diabetes 

On November 14, EURADIA member IDF Europe led World Diabetes Day throughout Europe. Activities and materials focused on the importance of starting the day with a healthy breakfast to help prevent the onset of type 2 diabetes and effectively manage all types of diabetes to avoid complications. Read more about IDF Europe’s work here

UN Secretary-General, Ban Ki-moon, released a message for World Diabetes Day, in which he called for global efforts to combat its causes, particularly those relating to unhealthy diet and physical inactivity. He called on governments, as well as the private sector and civil society, to unite in producing and promoting more food products consistent with a healthy diet that are affordable, accessible and available to all. More generally, he emphasised that, “a holistic approach to human health and the environment can serve to preserve biodiversity, encourage alternative forms of transportation, and boost the transition to a low-carbon economy”.

Progress to stem the tide of diabetes is too slow: Policy Puzzle 4th edition out now

Members of the European Coalition for Diabetes (IDF Europe, FEND, PCDE and EURADIA) have once again joined forces to publish this 4th edition of the Policy Puzzle at a time when Europe is still faced with the growing epidemic of diabetes, despite considerable and increasing political awareness of the health risks of diabetes and the realisation that the disease is largely preventable. The report reveals that, while diabetes treatment and prevention have improved across Europe, progress is simply too slow and too limited to stem the tide of the disease. It also highlights the urgent need for more sustained and coordinated action to improve the implementation and evaluation of policies to act on diabetes. Download the full report here, and the executive summary here. 

Good Practice and Chronic Disease: The EU Joint Action on Chronic Diseases and Promoting Healthy Ageing across the Life-Cycle (CHRODIS) 

CHRODIS is a European collaboration that brings together over 60 associated and collaborating partners from 26 Member States. These partners, including ECD, work together to identify, validate, exchange and disseminate good practice on chronic diseases across EU Member States and to facilitate its uptake across local, regional and national borders. On the 6th and 7th November 2014, CHRODIS Work Package 6 (Multimorbidity) and Work Package 7 (Diabetes) met in Vilnius, Lithuania. Mrs Anne-Marie Felton spoke during this meeting on behalf of the ECD on the theme of 'Diabetes: a case study on strengthening health care for people with chronic diseases'. 

Sarah Hills (EURADIA) also attended this meeting, during which progress on the work package was presented and possible synergies between the work packages and the partners involved were explored.


EURADIA at the 50th EASD Annual Meeting, September 15-19, Vienna

EURADIA was present during the EASD meeting in Vienna, Austria, as EASD is a member of the EURADIA Alliance. This was an excellent occasion for EURADIA to profile its activities and the many issues in which it is involved. The exhibition stand was located close to the registration area, which gave us an opportunity to connect with old friends and to talk with interested individuals.  With a participation of over 17,000 we were kept busy! During the EASD we met with colleagues to plan events during the year ahead including collaboration in scientific projects funded by Horizon 2020.  We also made the most of the excellent facilities to hold a meeting of the EURADIA members. EURADIA will be present again with a booth in the Association Village during the EASD in Stockholm in 2015.
Pictured above: Professor Michael Stumvoll (EURADIA Chair), Mrs Anne-Marie Felton (President, FEND) and Professor Ele Ferrannini (past President EASD).



Professor Michael Stumvoll (EURADIA Chair), Professor Andrew Boulton (President EASD), and Sarah Hills (EURADIA Executive Director).


European Coalition for Diabetes (ECD)

The European Coalition for Diabetes (ECD) is keeping a close eye on the changes in Brussels particularly around the newly elected European Parliament and will be keen to bring diabetes matters to the attention of interested MEPs in the EU Diabetes Working Group (EUDWG).  The Coalition also closely follows activity of the European Commission, which is especially relevant with the new Commissioners and their Cabinets in place since 1 November 2014.
 
The ECD will be supporting diabetes-related activity of the EUDWG MEPs in the Parliament in relation to questions being asked about diabetes and other activity (see below). Most recently, the ECD has been working on the shared project of the Policy Puzzle, mentioned above.

DIAMAP Roadmap for Diabetes Research


We are also in the process of updating the DIAMAP Road Map Report. This process is now underway, as the consultation process began this summmer. DIAMAP was originally a European Commission FP7-funded project that undertook a wide survey of the European diabetes research landscape, from which expert opinion could identify gaps and highlight strengths in order to guide a Road Map strategy for diabetes research in Europe. If you are a member of a European organisation that funds diabetes research, we would very much welcome your input. If so, please click here to complete the survey.
EURADIA COLLABORATION

InterConnect FP7 Initiative
 
Global Data for Diabetes Research:
First Funder and Stakeholder Meeting

10 October 2014, Brussels, Belgium


 InterConnect is an FP7-funded initiative on gene-environment interaction in diabetes and obesity. It is changing the way that data are used in population research into the causes of diabetes and obesity and creating the foundations to enable research to move from explaining the differences in risk within populations to being able to explain differences between populations. EURADIA is specifically responsible in its work package for developing a sustainable and dynamic network of stakeholders and we will also be disseminating information about InterConnect to the research community, funders, stakeholders and the wider public. You can find out more about the InterConnect project via www.InterConnect-diabetes.eu.

The particular focus of this meeting in Brussels was to develop a shared vision with funders and stakeholders of the challenges of current data sharing models and how InterConnect can change this paradigm. The meeting comprised presentations with table-based discussion facilitated by members of the InterConnect team (pictured left). Read more about the project here.

A key aspect of the InterConnect approach is that data stays within the governance arrangements of the organisation that collected it, but use of data from many different studies around the world is optimised. It builds on the work of a number of research groups that have developed open-source tools for data harmonisation and federated analysis of data and will apply and adapt these tools to develop a scalable and sustainable platform to enable population research into the causes of diabetes and obesity. The approach is egalitarian and democratic as it enables all those with responsibilities for studies to play a central role rather than simply providing data for others.
NEWS FROM EURADIA MEMBERS

New EU liaison office in Brussels

The EASD was pleased to announce both the opening of their new EU Liaison Office in Brussels on 1 November and the appointment of an EASD EU Liaison Officer, Mr Mischa van Eimeren. 

Enquiries relating to EASD and EU matters should be addressed directly to the EASD office EUoffice@easd.org



Successful 53rd Annual Meeting
Over three days more than 3,400 scientists, clinicians, nurses, sponsors, exhibitors and speakers came together for the 53rd Annual ESPE meeting in Dublin, focusing on the theme of ‘prevention and therapeutic innovations in paediatric endocrinology’. View the posters, abstracts and the full programme on the ESPE website. Webcasts of the ESPE 2014 plenary lectures from the meeting will also be available soon. 


Prevalence of cancer in patients with congenital IGF-1 deficiency – request for cooperation 
ESPE member Professor Zvi Laron is working on a project to update the previous survey on the prevalence of cancer in patients with congenital IGF-1 deficiency (Laron syndrome (primary GH insensitivity), congenital  IGHD, GHRH-R mutation, IGF-I gene deletion, IGF-1R mutation, congenital MPHD) - Steuerman et al. European Journal of Endocrinology (2011) 164; pp. 485–489. If you are following any relevant patients please contact ESPE via email: rachels112@gmail.com to receive a simple questionnaire.


19th Annual conference 2014
This year’s annual meeting welcomed colleagues from throughout Europe and beyond, with some participants travelling from Australia, Canada, Qatar and China. A wide range of issues was discussed, including the role of specialist diabetes nurses in person-centred care; post-bariatric surgery; and gender and diabetes to name a few.


The conference also explored the issue of politics and diabetes, highlighting the importance of collaboration between healthcare professionals and policy makers, not least given the challenge of diabetes to social and economic stability. A new venture for the FEND conference was the introduction of patient narratives from people living with diabetes, which were interspersed throughout the two days. These varied accounts provided a platform for the consideration of patient narratives within diabetes care. The videos of the presentations at FEND annual conference 2014 are now available and can be viewed here



UK’s NHS failing patients with type 1 diabetes
Karen Addington, JDRF’s UK's Chief Executive has called for an urgent focus on better type 1 diabetes health care, in response to the release of the UK National Diabetes Audit. She states that type 1 diabetes continues to be ‘forgotten’ in the NHS’s wider efforts to combat the increasing impact of diabetes on the nation. Read more here.

13th International Primary Care Diabetes Europe Annual conference
Webcasts now available here

 
NEWS FROM THE EU INSTITUTIONS







The new European Commissioners (2014-2019) © European Commission

The new European Commissionled by Jean-Claude Juncker, started its five-year term on 1 November, following a lengthy scrutiny process. Announcing his team, Juncker said, “Huge challenges await us. It is up to us to shape these challenges. If we want a role to play in the future we have to play it now. It is up to us to ensure that the handwriting of the European Social Model is clearly visible in everything we do”. 

Research, Science and Innovation: Carlos Moedas

 
Outgoing Commissioner: Máire Geoghegan-Quinn
New Commissioner: Carlos Moedas
Nationality: Portugese
Former post: Secretary of State to the Prime Minister of Portugal (2011-2014)

Responsibilities
  • Making sure that research funding programmes, notably Horizon 2020, contribute to the Commission's jobs, growth and investment package.
  • Promoting the international excellence of the EU's research and science and strengthening research capacities and innovation across all Member States.
  • Evaluating how EU‑funded research can be used more effectively.
  • Ensuring that Commission proposals are based on scientific evidence.
  • Encouraging private companies to apply research to meet challenges faced by society and create more high-quality jobs. 
Health and Food Safety:  Vytenis Andriukaitis


Outgoing Commissioner: Tonio Borg
New Commissioner: Vytenis Andriukaitis
Nationality: Lithuanian

Former post: Vice-President of the World Health Assembly (2014)


Responsibilities:
  • Modernising and simplifying EU food safety policy while keeping the current high level of safety and ensuring existing policies have maximum effect.
  • Ensuring the Commission is ready in supporting the EU’s capacity to deal with crisis situations in food safety or pandemics.
  • Reviewing the laws that oblige the Commission to authorise genetically modified organisms (GMOs), even when a majority of national governments opposes them.
  • Building up knowledge on the performance of national health systems to shape national and EU policies.
  • Helping address the challenge of increased calls on national health services at a time of intense pressure on public finances.
EC talking points:
  • Vice-Presidents: New, hierarchical College of Commissioners Juncker also announced new, powerful roles for a number of commissioners who he hopes will improve policy coherence and efficiency across the 29-strong college. Seven Vice-Presidents have been granted significant powers, including the authority to block initiatives from commissioners working under them. Read the EC position on vice-presidents here
  • Pharmaceuticals remain in DG Sanco but Medical Devices will most likely move to DG Enterprise. The decision to keep the pharmaceutical portfolio in DG Sanco was warmly welcomed by the wider health community, given earlier concerns about ensuring product safety, quality and accessibility. On 22 October, President Juncker stated that the "responsibility for medicines and pharmaceutical products will stay with the Directorate-General for Health because I agree with you that medicines are not goods like any other”. The European Health Forum reported on this issue here. However, the European Public Health Alliance have expressed serious concerns in relation to the portfolio for health technologies, which encompasses medical devices. The decision issued on 1st November indicates that the portfolio for Medical Devices will move to DG Enterprise. The European Public Health Alliance has since responded that, “the Health Directorate-General is best placed to ensure health technologies are regulated in the interest of patients’ safety and public health. Pharmaceuticals and health technologies are of equal importance in the provision of care and should not be treated differently. Over the past years, numerous scandals and controversies over faulty medical devices have shown the need to maintain a health and safety perspective over an economic growth perspective.” Read the full letter from the European Public Health Alliance here.

EUROPEAN PARLIAMENTARY QUESTIONS

Date: 31 October 2014
Question High Fructose Corn Syrup (from Christel Schaldemose, S&D, Denmark)

Answer: Given by Mr Andriukaitis on behalf of the Commission
 
Date: 10 October 2014
Question: Obesity (from Roberta Metsola, PPE, Malta)

AnswerGiven by Mr Andriukaitis on behalf of the Commission

Date: 10 September 2014
Question: Can the Commission specify whether it intends to issue any legislative initiatives to combat diabetes within the EU? 
(from Roberta Metsola, PPE, Malta)
Answer: Given by Mr Borg on behalf of the Commission
REPORTS AND RESOURCES

EU Platform on Diet, Physical Activity and Health - 2014 Annual Report 

Since the establishment of the EU Platform on Diet, Physical Activity and Health in 2005, well over 300 individual commitments have been implemented. This Annual Report is the seventh of its kind, presenting and summarising information on the extensive range of activities and achievements of the Platform during 2013 and commenting its members have monitored the progress of their commitments. Download report here and summary of commitments here.

WHO Europe: Everything you always wanted to know about European Union health policies but were afraid to ask by Scott L. Greer, Nick Fahy, Heather A. Elliott, Matthias Wismar, Holly Jarman, Willy Palm

What does the European Union mean for health and health systems? With a new European Parliament and Commission in place, now is the ideal time to pose this this question. However, as this new WHO publication indicates, the answer is not straightforward: EU policy affects health and health systems in many ways, and other EU policies also influence health systems indirectly. This book, launched at the European Health Forum Gastein, provides a helpful overview of the EU health landscape and offers a vision of how EU health policies may further evolve in the years to come.

New edition of Eurohealth, Special Gastein Issue on Electing health: the Europe we want


The latest issue of Eurohealth addresses many topics covered in the European Health Forum Gastein. The EHFG 2014 reflected on the opportunities and risks for health in light of the outcome of the 2014 European elections, and discussed how to maintain and improve the health of European citizens. Interviews with health leaders from WHO, the EU, and other important institutions are included.Webcasts from the conference are now available here

 
RESEARCH FUNDING

EURADIA’s next funding ebulletin will be coming to you soon, with all the deadlines you need from the ESFD, GACD, IMI, Horizon 2020 and information about the Wellcome’s Trust’s new funding structure.
RESEARCH PARTNERING

If you are in the process of putting together a consortium or seeking research partners, please do let us know and we will include your project details both here in our newsletter and on the EURADIA website. Please send a message to Sarah.Hills@Euradia.org
EVENTS 

EFGCP ANNUAL CONFERENCE 2015
How do we improve health without betraying confidentiality within current and upcoming EU Regulations?
27 & 28 January 2015
Brussels, Belgium


ADVANCES IN DIABETES AND INSULIN THERAPY
19 March 2015 to 21 March 2015
Budapest, Hungary


8TH INTERNATIONAL DIP SYMPOSIUM ON DIABETES, HYPERTENSION, MEDABOLIC SYNDROME AND PREGNANCY
15 April 2015 to 18 May 2015

Berlin, Germany


26TH NATIONAL CONGRESS SPANISH SOCIETY OF DIABETES
16 April 2015 to 18 April 2015
Valencia, Spain


DIABETES CONGRESS OF THE GERMAN DIABETES ASSOCIATION (DDG)
Personalized Diabetology – Innovative, Individual and Sustainable

13 May 2015 to 16 May 2015
CityCube Berlin, Germany


7TH INTERNATIONAL SYMPOSIUM ON THE DIABETIC FOOT
20 May 2015 to 23 May 2015
The Hague, The Netherlands


Send us your news

EURADIA publishes meeting and deadline dates on its website (under News – Diary Dates) and will include relevant reports and articles in its newsletter.  Contact secretariat@euradia.org






 

EURADIA: The Alliance for European Diabetes Research

EURADIA is an alliance of non-profit organisations and health care companies working together to further the cause of diabetes research. EURADIA has existed since 2003 and as a registered non-profit organisation in Germany since 2007. EURADIA UK was registered as an independent charity in 2013. 

EURADIA serves as a visible and effective advocate for diabetes research at the highest levels, representing the best interests of both academia and the healthcare industry. 

 

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