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EURADIA Newsletter

July 2014
CONTENTS

NEWS FROM EURADIA
INTERCONNECT PROJECT (FP7 FUNDED)
NEWS FROM EURADIA MEMBERS

NEWS FROM THE EU INSTITUTIONS
RESEARCH FUNDING
RESEARCH PARTNERING
EUROPEAN PARLIAMENTARY QUESTIONS ON DIABETES 
NEWS ON
 HEALTH AND RESEARCH ISSUES 
REPORTS
EVENTS

NEWS FROM EURADIA


We are also in the process of updating the EURADIA DIAMAP Project and the DIAMAP Road Map Report. This process is now underway, as the consultation process began in June. DIAMAP was originally a European Commission FP7-funded project that undertook a wide survey of the European diabetes research landscape, from which expert opinion could identify gaps and highlight strengths in order to guide a Road Map strategy for diabetes research in Europe. If you are a member of a European organisation that funds diabetes research, we would very much welcome your input. If so, please send an email to sarah.hills@euradia.org, and we will arrange for the DIAMAP questionnaire to be sent to you via email. Watch Professor Cliff Bailey of Aston University, Birmingham, UK, discuss the updated DIAMAP Project and find out how you can get involved.


 

INTERCONNECT

PROJECT
(FP7 funded)


With the support of the European Commission, this 4-year scoping project led by Professor Nick Wareham, Cambridge, UK, aims to establish a global network that will facilitate the co-ordination of population research on the interaction between genetic and environmental factors in the causes of obesity and diabetes. EURADIA is specifically responsible for developing a sustainable and dynamic network of stakeholders and we will also be disseminating information about InterConnect to the research community, funders, stakeholders and the wider public. You can find out more about InterConnect via www.InterConnect-diabetes.eu

*InterConnect stakeholder and funder meeting*
InterConnect's first meeting for the stakeholder and funding networks will take place in Brussels on Friday 10 October. If this might be of interest, please Sarah.Hills@euradia.org
 

NEWS FROM EURADIA

MEMBERS


Survey – Screening of celiac disease in type 1 diabetes patients
EURADIA member the European Society for Paediatric Endocrinology Endocrinology (ESPE) its
 members’  participation in their online survey, from a research team with a particular interest in the screening of celiac disease in asymptomatic type 1 diabetes patients. It will target paediatric endocrinologists and paediatricians with an expertise in type 1 diabetes. As far as ESPE is aware,  this survey counts among the first to be undertaken in this field. The survey is composed of 17 questions, which can be completed in less than 5 minutes. All answers will be collected anonymously.  This research is lead by ESPE member Dre Diane Rottembourg and Dre Brigitte Moreau from the University of Sherbrooke, Canada. Please follow the link to the survey here

Economics of Chronic Diseases: Cost-Effectiveness Modelling and the Burden of NCDS In Europe
As a member of the European Chronic Disease Alliance, the International Diabetes Federation (IDF Europe) is an associate partner of this EU Commission funded project that aims to establish the best possible methods of measuring cost-effectiveness as well as develop micro-simulation models apt at projecting future burden of chronic diseases, their costs and potential savings after implementation of cost-effective interventions. Please click here to download the EConDA’s first published paper presenting preliminary results on cost-effectiveness modelling.



The IMI - JDRF Diabetes Patient Focus meeting took place on Tuesday 20 May in Brussels. Participants included patient carers and patient groups, policy-makers, industry decision-makers, SMEs, academia and researchers, representatives of other public-private partnerships (PPPs), and research funding organisations. The event was an opportunity for people with type 1 diabetes to discuss the impact the condition has upon the lives. The meeting was primarily dedicated to identifying research and development gaps in the diabetes area from the perspective of patient needs and challenges. Karen Addington, Chief Executive of JDRF UK, commented: “Research progress in type 1 diabetes has never been faster than it is today. There are now tangible opportunities for research to transform the lives of people affected by the condition. But it is crucial that those people are placed at the heart of the research dialogue.’ Videos from the event are available here
 

NEWS FROM THE EU

INSTITUTIONS


EU elections The recent EU elections saw a declining turnout of 43.1% and represented a major protest vote against the EU project, as the number of MEPs from Eurosceptic parties doubled. In France and the UK, anti-EU parties made massive and historic gains, with success for the National Front and UKIP. However, Italy had a relatively high turn out of 60%, with voters giving strong support to the new centre-left Democratic Party prime minister Matteo Renzi, and both Greece (Syriza) and Spain (Podemos) saw a rise in popularity for the Eurosceptic leftists.
                       
EURADIA member IDF Europe is calling on the newly elected members of the European Parliament to support the diabetes pledge to promote equal access to quality diabetes care, prevention and research. The diabetes pledge summarises the key issues that IDF-Europe advocates to see advanced at EU level over the next five years. Click here to read the pledge and please contact Katie Gallagher at IDF at katie.gallagher@idf-europe.org if your organisation would like to endorse it. 

 
The Joint Action on Chronic Diseases The European Union and Member States met to address the common challenge of chronic diseases via The Joint Action on Chronic Diseases (CHRODIS-JA). The Chronic Disease Summit took place on 3-4 April and delegates discussed medical, social and economic benefits of sustainable investments in health, ways to reduce the burden of chronic diseases, and how to strengthen the prevention and management of chronic diseases, with a focus on EU added value and action. See here for the European Commission’s update about this Joint Action, and watch the online broadcasts from the conference. The CHRODIS website is now live at http://www.chrodis.eu/


Launch of Green Paper consultation on mHealth Mhealth (mobile health) is an emerging and rapidly developing field with around 100,000 mHealth apps currently available across multiple platforms on the global market. There exists on-going debate surrounding the extent to which new technology solutions might be able to empower people with diabetes to manage their health more effectively while also enabling health professionals to treat patients more effectively. On April 10, the European Commission launched a public consultation alongside the Green Paper on mobile health to help identify how to unlock the potential of mobile health in the EU. The Consultation, open between 10 April and 3 July 2014, looked for inputs from interested stakeholders on barriers and issues related to the use of mHealth.

European Patients’ Rights Day: The role of citizens' organisations in the empowerment of patients with chronic diseases The 8th European Patients’ Rights Day was marked in Brussels on May 12. Commissioner for Health, Tonio Borg, commented that the day, “serves as a reminder to health policy makers such as myself that patients should remain at the heart of our decisions and policies...Empowering patients means ensuring they are fully informed and in control of their own health care. This is a key principle of the EU Directive on patients’ rights in cross-border healthcare which Member States were required to have transposed into national law by last October. It foresees a contact point in each Member State to provide patients with all relevant information, not only on practical issues for seeking planned healthcare in another EU country and being reimbursed for it, but also on quality and safety of care”.

The Future of Europe is Science: high-level conference
A high-level meeting is planned for 6-7 October in Lisbon, opened by Jean-Claude Juncker,  the new President designate of the European Commission. Bringing together actors from the world of science, industry and society, the conference aims to take stock of European achievements in science over the past 10 years.  World-class scientists will debate with industrialists and political figures on key questions: How will we keep healthy? How are we going to live, learn, work and interact in the future? How will we produce and consume and how will we manage resources? More details to follow here soon.


RESEARCH FUNDING


See EURADIA’s funding bulletin for details of all Horizon 2020 and other relevant calls on the EURADIA website



Upcoming deadlines:
1 September 2014: ESFD/Lilly European diabetes research programme
1 October 2014: EFSD/Janssen programme for the study of the role of the kidney in diabetes


IMI has now launched its 1st Call for proposals under IMI 2
The Call text, as well as details of how to apply, can be found on the Call web page.
 
This Call features two topics:
  • Translational approaches to disease modifying therapy of Type 1 Diabetes Mellitus (T1DM)
  • Discovery and validation of novel endpoints in dry age-related macular degeneration and diabetic retinopathy
Deadline for submitting Expressions of Interest (EoIs): 12 November 2014 – 17:00 CET
Webinars: From 11 to 15 July 2014 IMI will hold webinars on each Call topic and on IMI 2 rules and procedures. For more information and to register please visit the webinar page.
Find partners for submitting a proposal: Search for project partners via the Partner Search Tool. 


RESEARCH PARTNERING
If you are in the process of putting together a consortium or seeking research partners, please do let us know and we will include your project details both here in our newsletter and on the EURADIA website. Please send a message to Sarah.Hills@Euradia.org


EUROPEAN

PARLIAMENTARY

QUESTIONS ON DIABETES


Date: 31 January 2014
Question: Diabetes rates in Cyprus and Malta
Answer: Answer given by Mr Borg on behalf of the Commission
 
Date: 5 February 2014
Question: Prevention of type 2 diabetes
Answer: Answer given by Mr Borg on behalf of the Commission

 

NEWS ON HEALTH AND

RESEARCH ISSUES


July 11, Member States commit to reduce preventable deaths from heart disease and stroke, cancer, diabetes and lung disease
Member States gathered at the United Nations in New York to discuss how to combat the growth of NCDs (non-communicable diseases). It was recognised that progress has been slow and uneven since 2011, when the international community agreed on global mechanisms including a Global NCD Action Plan. “The obesity epidemic has been getting worse, not better, for more than 3 decades,” stressed WHO Director-General Dr Margaret Chan. “Industry practices, especially the marketing of unhealthy foods and beverages to children, play a contributory role...Healthier food formulations are neither affordable nor accessible in large parts of the developing world. Unfortunately, the unhealthiest foods are usually the cheapest and most convenient.” Read more here.
 
 
26 June, New EC logo launched for online pharmacies to protect patients from falsified medicines.  This is the logo that will appear on the websites of legally operating online pharmacies in the EU and will link to the national competent authority websites where all legally operating online pharmacies in their respective countries will be listed.
 
11 June, Bad for your health, bad for your rights: it’s time to deal with junk food – UN expert. The UN Special Rapporteur on the right to health, Anand Grover, has blamed ‘junk food’ for the global obesity epidemic and urged the international community to deal with the alarming increase in deaths from diet-related diseases: “The culprit is ‘junk food...primarily responsible for the burgeoning rates of obesity and non-communicable diseases across the world, “‘junk food’ is not a simple public health issue or a medical concern, it poses a serious challenge to our lives, our health and our rights,” the Special Rapporteur added. To reverse the obesity epidemic, Grover urged States to implement their human rights obligations, not only by providing nutritious food but also by instituting measures to reduce the burden of diseases linked to ‘junk food’. Read more here. 


June 4-5, The Data Protection Regulation The LIBE committee (civil liberties, justice and home affairs) of the European Parliament have proposed 2 significant amendments (Articles 81 and 83) to the Data Protection Regulation. This proposed new Regulation would extend the scope of EU data protection law significantly. An increasing number of organisations argue that the benefits generated by scientific research involving personal data will be seriously hindered, if not rendered illegal. The Wellcome Trust released a joint statement earlier this year urging the Council of Ministers to maintain the original Commission text and to oppose the LIBE committee’s amendements both in the plenary vote and in trilogue negotiations. Please see here for a full list of signatories and contact Beth Thompson, policy advisory at the Wellcome Trust, for further information.

REPORTS

 The new edition of Eurohealth on ‘Health behaviours and incentives’ is available to download here. It explores the application of behavioural science to nudge populations towards better health and wellbeing.


The GACD 2013 Annual report now available to download here, with a focus on its US$30 million joint funding diabetes call for proposals (*now closed*) on the prevention and treatment of type 2 diabetes. The focus is on implementation and intervention research in low- and middle-income countries, and vulnerable and indigenous populations in Canada and Australia. The emphasis of this initiative is on existing approaches to prevention and control of type 2 diabetes rather than the development of new treatments

 

EVENTS 

European Forum for Good Clinical Practice (EPGCP) Multi-Stakeholder Workshop & Discussion: How to Ensure Optimal Ethical Review within the New Clinical Trials Regulation?
11 September, Brussels, Belgium

More information here 

19th Fend Annual Conference
12-13 September, Vienna
More details forthcoming, see here




50th EASD Annual Meeting
15-19 September, Vienna
Abstract submission deadline: 1 April
Early registration deadline:1 July





Diabetic Food Study Group at the EASD
12-14th September, EASD Vienna

2nd DZD Diabetes Research School
14-15 September, EASD, Vienna


ESPE Dublin 53rd Annual Meeting
18th-20 September, Dublin
Early bird registration: 23 April 
Standard registration: 23 July


EUPATI 2014 workshop: reaching the general public on medicines development
2 April, Warsaw
More details forthcoming, see here


 European Health Forum, Gastein

1-3 October
More details forthcoming, see here

The Pisa International Diabetic Foot Courses

1-4 October, Pisa, Italy
Early Registration Deadline: 1 July 


Fourth Cross Border Healthcare Conference
6-8 October 2014,Tallin, Estonia
Registration deadline: 15 September

7th European Public Health Conference: Mind the gap: Reducing inequalities in health and health care 
19-22 November 2014, Glasgow, UK 

EFGCP Annual Conference 2014: How do we Improve Health without Betraying Confidentiality within Current and Upcoming EU Regulations?

28 and 29 January 2015, Brussels, Belgium.


Send us your news

EURADIA publishes meeting and deadline dates on its website (under News – Diary Dates) and will include relevant reports and articles in its newsletter.  Contact secretariat@euradia.org


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EURADIA: The Alliance for European Diabetes Research

EURADIA is an alliance of non-profit organisations and health care companies working together to further the cause of diabetes research. EURADIA has existed since 2003 and as a registered non-profit organisation in Germany since 2007 and in the UK since 2013. EURADIA serves as a visible and effective advocate for diabetes research at the highest levels, representing the best interests of both academia and the healthcare industry. The European Commission and Parliament recognise EURADIA as a unique alliance and an important facilitator of public-private partnerships. 

 

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