December 3rd, 2021
The biweekly newsletter for the NYS CYSHCN Project.
Items in this email are relevant to all 58 NYS LHDs.
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Events and Resources for Professionals

Contraception and Seizure Disorder
Dec 7th at 12-Noon · By PICCK · Free

The Institute of Medicine estimates over one million people in the U.S. with reproductive capacity have epilepsy. People with seizure disorders face unique concerns related to their reproductive health. Join Partners in Contraceptive Choice and Knowledge (PICCK) for a discussion of the considerations for contraceptive and preconception counseling with patients who have seizure disorders. Register here.

Events and Resources for Families

SANYS 2021 Virtual Statewide Conference
"Stronger Together"
Dec. 9th, 10th, 11th · By SANYS · Free

Join the Self Advocacy Association of New York State (SANYS) on December 9th, 10th, and 11th on Zoom for our Annual Statewide Self-Advocacy Conference. Register here.
The Vaccine & Covid-19 in NYC Schools / La Vacuna y Covid-19 en Escuelas de NYC / 纽约市学校的疫苗和 Covid-19
Dec. 15th · By El Centro Metropolitano de Padres · Free

The first portion of this webinar, focusing on facts about COVID-19 and vaccination, is relevant to all across New York State.

With seemingly frequently shifting policies, mandates, and constant rumors and myths about Covid-19 and vaccines, we want to provide more clarity on both—vaccine safety and efficacy, who is impacted and how, and understand the risk as well as protocols in place to protect our children, especially our most vulnerable students, students with disabilities. We will also dispel myths, rumors, and disinformation and answer any additional questions you may have on these matters in a judgement-free / safe space. 

  • Dr. Michelle Ramirez of NYU-Langone
  • Jose Rios Lua, Director of Family Empowerment & Communication, NYC Department of Education
  • JC Cortez, Director of Training & Development, Metropolitan Parent Center at Sinergia
  • Spanish with simultaneous English and Mandarin interpretation.
  • American Sign Language (ASL) and other accommodations can be made during registration or by contacting JC Cortez, or 646.597.7907.
Turning Five: Moving from preschool to kindergarten for students with Disabilities
Multiple Dates · By AFC · Free

Join Advocates for Children of New York (AFC’s) educational experts to learn more about how to get special education services for students with disabilities as they move from preschool to kindergarten.
Families of children with disabilities born in 2017 will participate in two processes this year: the Kindergarten Admissions process and the Kindergarten IEP process. Learn more about our two-part Turning 5 workshop series, where we’ll discuss how to get special education services for students with disabilities as they move from preschool to kindergarten, applying to kindergarten, parents’ rights, advocacy tips, and how to get help navigating these two processes. 

Registrarse para un webinar en español:
Media and Research Corner
Covid killed her disabled brother, paralyzing her with guilt. Could she recover?
Dec. 2nd· By The Washington Post · Limited Free Articles

Jeneffer Estampador Haynes always tried to protect her younger brother, John, with Down syndrome. Then she lost him to the pandemic and lost herself, too. Read the article here.
We Could All Use a Jodi in Our Lives
Nov. 19th · By The New York Times · Limited Free Articles

Jodi Rodgers, who helps people with autism navigate the world of dating on the Netflix show “Love on the Spectrum,” has some lessons for all of us. Read the article here.

Underdog No More, a Deaf Football Team Takes California by Storm
Nov. 15th · By The New York Times · Limited Free Articles

The California Riverside School for the Deaf athletic program has suffered a number of humiliations and harassment over the years. Nobody humiliates the Cubs anymore. They are undefeated this season – the highest-ranked team in their Southern California division. Read the article here.
The Pandemic’s Impact on Children: COVID Vaccinations & Mental Health
Nov. 18th· By NIHCM Foundation · Free

Children’s health care professionals in the US have declared a national state of emergency in child and adolescent mental health. The ongoing stress, fear, grief, disruption of schooling and uncertainty created by the COVID-19 pandemic has weighed heavily on children and teens, and many are having a tough time coping emotionally.

More than 140,000 children have experienced the death of a parent or grandparent caregiver from COVID-19. Black, Latino, and Native American children have been hit especially hard. Research shows they have had up to 4.5 times the risk of losing a caregiver to COVID, compared to White children. As of November 2, the Centers for Disease Control and Prevention (CDC) recommends all children 5-11 be vaccinated against COVID-19, making shots available to an additional 28 million more children. The CDC estimates vaccinating all these children, 5-11 years old, could prevent around 600,000 new COVID cases.
Despite calls to improve, air travel is still a nightmare for many with disabilities
Nov. 9th · By NPR · Free

Congress told the Transportation Security Administration and airlines in 2018 to improve air travel for people with disabilities. But TSA data and stories from flyers suggest little has improved. Read the article here.
COVID-19: A Discussion for Children, Teens and Adults with Developmental Disabilities and Families
Recorded Webinar from Nov. 4th · By RFK CERC · Free

The VaxFactsDDNY team at the Rose F. Kennedy Children's Evaluation and Rehabilitation Center (RFK CERC) at Einstein/Montefiore and the Interagency Council of New York (IAC NY) held a webinar on how to navigate thoughts and feelings that arise during the COVID-19 pandemic for children, teens, and adults with developmental disabilities and their families. ASL and Spanish interpretation was provided.
This email was sent from the Regional Support Centers (RSCs) for the Children and Youth with Special Health Care Needs (CYSHCN) Program (“The CYSHCN Project”) team. You are receiving this email because you are listed as a Local Health Department (LHD) contact for the CYSHCN Project.

Each LHD is paired with a RSC: 
Please see below for your RSC contact:
-    NYC, Suffolk, Nassau = Rachel Passmore,
-    Western and Central NY and the Southern Tier = Mark Prins,
-    Eastern NY from the Hudson Valley to the Northern NY Border = Angel Morales,

Find Out More
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