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CYSHCN Clips!

January 21st, 2022
The biweekly newsletter for the NYS CYSHCN Project.
Items in this email are relevant to all 58 NYS LHDs.
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Events and Resources for Professionals

Caring for Transgender Youth with Dignity and Respect
Jan. 24th at 12:00 PM · By The New York State Youth Justice Institute · Free

Join us for the next session of our “Lunch & Learn” webinar series!

We will be hosting Samantha Busa, PsyD, the clinical director of the Gender and Sexuality Service and Clinical Associate Professor of Child and Adolescent Psychiatry at the Child Study Center at Hassenfeld Children’s Hospital at NYU Langone. Dr. Busa follows a gender-affirmative model of care and provides gender assessments for transitional care working with children, adolescents, young adults, and their families. Specifically, she treats patients who have anxiety disorders, mood disorders, tics and Tourette disorder, trichotillomania and body-focused repetitive behaviors, and school refusal using cognitive behavioral therapy (CBT), dialectical behavioral therapy (DBT), and habit reversal training. Register here.

Events and Resources for Families & Professionals

Mental Health & Developmental Disabilities ECHO Training
Started Jan. 20th at 1:00 PM EST · By MHDD ECHO · Free

The Mental Health & Developmental Disabilities (MHDD) ECHO offers a virtual network of real-time access to experienced experts in the field of mental health for people with developmental disabilities. Through the use of a hub and spoke model, MHDD ECHO gives participants the opportunity to take an active role in rich dialogue with the hub team and with their fellow spokes in an interdisciplinary teaching and learning environment. Each session includes a brief lecture, deidentified case presentation, and open discussion facilitated by an interdisciplinary team. Register here.

COVID-19: Information & Resources
Jan. 20th · By NYPLI · Free 

The switch to remote education because of the coronavirus crisis has created many educational challenges for families. New York Lawyers for the Public Interest (NYLPI) offers the following information, arranged in alphabetical order, to students with disabilities, their caregivers, and other advocates. We will update the information as soon as we learn of changes and additions, particularly information related to COVID-19. Please contact us if you seek advocacy assistance regarding the education of your child with a disability.

Introduction to the Vocational Rehabilitation Program
Jan. 24th at 2pm · By RAISE Center · Free

This session by the RAISE (Resources for Access, Independence, Self-Advocacy and Employment) Center will provide a basic overview of the services available from the vocational rehabilitation system for people with disabilities. It will cover eligibility, developing the Individualized Plan for Employment, available services, and financial factors to consider. Presented in English and Spanish. Register here.
Parents Considering a Residential Placement Discussion Group
Starts Jan. 25th at 7:00 PM · By Parent to Parent of NYS · Free

Join this 1-hour webinar of support and conversation about the issues and emotions that we experience when making the difficult decision of residential placement. Register here.
For more information please contact: Regional Coordinator. Sharon Linne - slinne@ptopnys.org
 
Q & A on Fetal Alcohol Syndrome Disorder (FASD)
Starts Jan. 31st at 7:00 PM · By Parent To Parent of NYS · Free

Join our discussion group for parents of children and adults with FASD:
Do you feel isolated or alone?
Are you struggling with your child’s meltdowns, stealing, lying, school issues, and/or family relationships?
How can we support each other? Register here.
For more information, please contact: Regional Coordinator, Dianne O’Connor: dianne@ptopnys.org or 518-381-4350 x24
People with Hydrocephalus and Spina Bifida: COVID Conversations
Jan. 27th at 7:00 PM · By VaxFactsDDNY · Free

This virtual event will discuss what is new, including vaccine updates. FAQ to follow. ASL interpretation provided. ​Join our Facebook event, too

Quick Tips to Address Challenging Behaviors in Children with Autism
Jan. 27th at 7:00 PM · NYSRCASD · Free

Dr. Reeve has worked in the autism field for more than 20 years. Her webinar, hosted by the New York State Regional Center for Autism Spectrum Disorders (NYSRCASD) at Old Westbury is open to all and will cover tips for teachers/staff and families to help address challenging behavior in children with autism. Register here.

2022 New Jersey Assistive Technology Virtual Vendor Expo
Feb. 3rd at 9:00 AM · By DRNJ · Free

Join consumers and professionals for a day of learning and sharing about Assistive Technology at our 2022 New Jersey Assistive Technology Virtual Vendor Expo hosted by the Richard West Assistive Technology Advocacy Center at Disability Rights New Jersey (DRNJ).

The day will consist of an opening keynote, concurrent 30 minute vendor specific presentations and (2) open exhibit hall sessions hosted in Kumospaces. Register here.

Media and Research Corner
Let's Talk - Q&A: COVID-19 Vaccines & Children With Developmental Disabilities
Jan. 2022· By Exceptional Parent Magazine · Free

This article is based on the virtual talk COVID-19 Vaccines and Children with Developmental Disabilities: Let’s Talk given by Dr. Lisa Shulman on Wednesday, November 17th, 2021. It is written by Lisa Shulman, MD, and the Einstein RSC's Rachel Passmore, MPH, and Andrea Deisher, RN, BSN, MPH, and focuses on question-and-answers for COVID-19 vaccines for children with autism and other developmental disabilities. Read the free article here.

Overcoming Medical Education and Training Barriers in the Bronx
Nov. 2021· By Exceptional Parent Magazine · Free

Albert Einstein College of Medicine received a grant to develop a special curriculum for medical students to treat adults with intellectual and developmental disabilities and address educational gaps in medical schools to reduce health disparities for this population. The National Curriculum Initiative in Developmental Medicine is led by Vincent Siasoco, MD, MBA and the Einstein RSC's Joanne Sigel, LCSW. Read the free article here.
Britney Spears Left her Guardianship, but Others who want Independence Remain Stuck
Jan. 9th · By NPR · Free
In recent years, there has been a growing shift toward less restrictive options that allow adults with physical or intellectual impairments more independence while supporting them in making decisions. It's a system that has come under scrutiny nationwide after pop star Britney Spears sought to end her conservatorship. In September, in response to the Spears case, the U.S. Senate convened a committee hearing focused on the issue of guardianship reform.

Learn more about guardianship!
Read the plain language version of Here Are 8 Major Takeaways From BuzzFeed News’ Investigation Into Guardianships, below:

8 Important Findings From BuzzFeed News’ Investigation Into Guardianships
Written by Katie J.M. Baker and Heidi Blake and adapted by Sandy Mislow of the Self-Advocacy Association of New York State (SANYS).
Guardians who follow the rules can be very helpful for people with disabilities. But some people under guardianship have been abused, neglected, and killed.
New York governor announces 'historic' investment in schools for children with disabilities
Dec. 30th, 2021 · By Times Union · Free

Gov. Kathy Hochul says funding for preschool and school-age special education providers will increase 15 percent. She plans for a $240 million increase in funding for schools serving children with disabilities in her upcoming 2022-2023 executive budget. Read the free article here.

Additionally...
The paper, "Exploratory Spatial Analysis of Autism rates in New York State" authored by the Einstein RSC's Kathleen McGrath and Karen Bonuck, was recently cited in a Senate bill. As part of Kathy Hochul's passed legislation to prioritize disability funding, the New York State Autism advisory board is tasked with developing a plan for funding/mapping autism rates in NYS. Greg Roberts asked Kathleen McGrath if she could present at the advisory board's quarterly meeting this summer to discuss the autism mapping paper and answer questions about the process.
 
This email was sent from the Regional Support Centers (RSCs) for the Children and Youth with Special Health Care Needs (CYSHCN) Program (“The CYSHCN Project”) team. You are receiving this email because you are listed as a Local Health Department (LHD) contact for the CYSHCN Project.

Each LHD is paired with a RSC: tinyurl.com/RSCs-LHDs 
Please see below for your RSC contact:
-    NYC, Suffolk, Nassau = Rachel Passmore, rachel.passmore@einsteinmed.edu
-    Western and Central NY and the Southern Tier = Mark Prins, Mark_Prins@URMC.Rochester.edu + Mariela Leon-Thomas, mariela_leon-thomas@urmc.rochester.edu 
-    Eastern NY from the Hudson Valley to the Northern NY Border = Angel Morales, amorales@wihd.org

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