February 22nd, 2022
The biweekly newsletter for the NYS CYSHCN Project.
Mentioned items are relevant to
Local Health Departments and community based organizations across New York State.
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Events and Resources for Professionals

Learning from Patients to Provide Accessible Healthcare and Effective Communication for Patients who are Blind or have Low Vision
Registration ends: Midnight on Feb. 23rd · By Pacific ADA Center · Free

In this presentation, American Foundation for the Blind (AFB) will share the experiences of people who are blind or have low vision when seeking healthcare based on focus group research on patient health experiences. These experiences identify ways providers can operationalize the ADA's requirements for healthcare accessibility to provide better care for these patients. Medical professionals and healthcare administrators will develop techniques for working directly with patients and understanding where training and facility design can contribute to high-quality, accessible patient care. Register here.

Related article of interest:
New York State Developmental Disabilities Planning Council: Conference Access Funding
Deadline: Feb. 25th at 11:59 PM · By NYS DDPC · Award Amount: Maximum $5,000, Minimum $2,500

The New York State Developmental Disabilities Planning Council (NYS DDPC) is seeking grant applications that support the participation of individuals with intellectual and developmental disabilities (I/DD), family members and caregivers at conferences, workshops, events, and other activities related to the DDPC approved State Plan. The specific objective of the funding is solely to assist individuals with intellectual and developmental disabilities (I/DD) their families and caregivers in attending conferences and events, thereby granting them greater access to information, training, and other activities which will increase their ability to affect public policy.

Learn more about this opportunity by following this link: Conference Access Funding | Developmental Disabilities Planning Council (
MHDD Webinar Series: Promoting Resilience in Families During COVID
March 1st at 2:00 PM · By Mental Health and Developmental Disabilities National Training Center · Free

This webinar will focus on the impact of COVID-19 on family mental and emotional health and well-being and discuss strategies to promote resiliency with family members with co-occurring mental health and developmental disabilities. Register here.
Empowering New American Parents in the Early Identification of Disabilities in Children
March 3rd at 3:00 PM · By Office of New Americans: Ramirez June Initiative · Free

Join this virtual training to:
  • Help parents learn about and celebrate their children's growth and development.
  • Provide parents with tools to identify the early signs of disabilities. 
  • Learn about available resources and how to get help. 
Register here. If you have any questions, contact

Also -- Get Voyage! Voyage is a free, multi-lingual resource book to help new American families identify signs of disabilities and get help early, created by the ONA Ramirez June Initiative in partnership with New York Act Early Ambassador to the CDC. All content in Voyage is available in two languages, English and a second language including Chinese (Simplified), Spanish, Russian, Bengali, Haitian Creole, and Korean. Sign up to receive free copies of Voyage and multi-lingual informational material about the early identification of disabilities from the CDC, mailed to you at no cost. 

Events and Resources for Families & Professionals

Register for Upcoming AAIDD Webinars & Virtual Education
Multiple Dates with Multiple Times · By AAIDD · $10 for Non-Members

The American Association on Intellectual and Developmental Disabilities (AAIDD) presents the following webinars:

  • 2/23/2022, 3:00 PM - 4:00 PM: Revisiting the Kallikaks: A Conversation with Good Blood, Bad Blood Author Michael Wehmeyer
    • Good Blood, Bad Blood is a landmark publication in the history of the treatment of people with disabilities in this country. In anticipation of the second edition's release as well as in memoriam co-author J. David Smith, AAIDD is hosting a webinar with co-author Michael Wehmeyer in which he will discuss the inspiration, creation, and impact of this essential piece of literature in the field of IDD.
  • 3/1/2022, 2:00 PM - 3:00 PM: Structural Factors that Influence Outcomes for Black People with IDD
    • AAIDD Released a special editing of Inclusion in September 2021 focused on racial and ethnic equity for people with intellectual and developmental disabilities (IDD) in society. The articles within the issue explore different topics related to intersectionality and the experiences of non-white individuals with IDD, as well as their families and caretakers. This webinar features a panel of authors published in the September 2021 Inclusion special issue sharing their expertise and research.
This is our Shot! A Discussion about the COVID-19 Vaccination for Children and Youth with Special Health Care Needs
Feb. 24th & March 1st at 6:30 PM · By PTP of NYS · Free

Through funding from Family Voices, Parent to Parent of New York State hosts a forum in English/Spanish to discuss concerns and answer questions about the COVID-19 vaccine for children and youth with special health care needs (CYSHCN). Registration is required to attend - Questions: Contact Rocio Zumaya / / (516) 654-6591

  • English: Thursday, February 24th, 6:30-7:30 PM -- Register here.
  • Spanish: Tuesday, March 1st, 6:30-7:30 PM -- Register here.

Related articles of interest:

Dietary Therapy Options for Epilepsy
March 9th at 7:00 PM · By Epilepsy Foundation · Free 

Medical professionals will present this webinar on Dietary Therapy Options for people with Epilepsy. For patients, caregivers, and professionals. Features: Shefali Karkare, MD: Director at Pediatric Epilepsy Center Cohen Children's Medical Center and Michelle Burch, RD: Dietician & Nutritionist. Register here.

This email was sent from the Regional Support Centers (RSCs) for the Children and Youth with Special Health Care Needs (CYSHCN) Program (“The CYSHCN Project”) team. You are receiving this email because you are listed as a Local Health Department (LHD) contact for the CYSHCN Project.

Each LHD is paired with a RSC: 
Please see below for your RSC contact:
-    NYC, Suffolk, Nassau = Amy Morales-Lara,
-    Western and Central NY and the Southern Tier = Mark Prins, + Mariela Leon-Thomas, 
-    Eastern NY from the Hudson Valley to the Northern NY Border = Angel Morales,

Find Out More
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