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NeoQIC Family Engagement Collaborative Newsletter
Acknowledgments 
 
Dear Family Engagement Collaborative, 

Thank you to all who were able to join our March webinar series last week! We want to send a special thank you to Nicole Lomerson who allowed us to hear her incredible story as a NICU mom with cerebral palsy and how she navigated the NICU. She also shared some valuable resources for improving the quality of care for families with disabilities (listed below)! We also want to send a special thank you to Dr. Cordova Ramos, Señorita Garcia Ramos, and the Velez Ortiz family who did an incredible job sharing their testimony! Finally, we want to send a sincere thank you to the leadership team who helped put this all together! We appreciate you all! 

Best, 
Meg Parker, Neonatologist at BMC and Leader of the NeoQIC Family Engagement Project


 
How to support Disabled Parents
 
´Connect with Local Centers for Independent Living
´ Engage in early Intervention - Assess family needs! 
´Developmental Disability Service Organizations
´Connect parents with Peer Support groups (in-person and online)
´Don't forget about the Informal supports that new all parents need
 
(Feel free to connect with Nicole Lomerson on LinkedIn or Twitter )
How to Claim CME, CNE, CE Certificates 
For those who have attended, you should have received an email with instructions on how to claim your continuing education credits. If you have any questions or have not received an email, please contact Mariana Serrano!
Project Updates 
The last month's homework form will be due by March 15, 2021. This includes working on a PDSA. Please fill out as much as you can on your PDSA, even if it's just part of a new plan or an update to last month’s plan! We truly appreciate all your efforts in helping us to understand your progress. Feel free to contact Mariana Serrano @ mdsms@bu.edu if you have any questions. 
Next Steps 
IRB: Team leads should be working on submitting their IRBs if you haven’t done so already
  • Please feel free to reach out to us with questions!
  • Once your IRB has been approved, please let us know.
DUA status: Master NeoQIC DUAwill be ready in 1-2 weeks!!
  • More information soon to come! 
Update on Team Rosters: Teams leads please send us your updated team rosters to Mariana
  • In the next few weeks, we will connect with team leads to schedule site visits
Reminder about paper data collection:
  • Hospitals can begin data collection on a paper form if you so choose (all questions will show up on paper without skip logic).
  • Once the DUAs are complete and the REDCap database is finalized, you will have to enter the data from the paper forms into REDCap
  • Data collection will begin for babies admitted at least 2 weeks up until discharge
Upcoming Webinars  
April 21st from 2-3 pm
June 9th from 2-3 pm

More information to come next month! 
See you all next month! 
NeoQIC
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BMC · n.a · Revere, Ma 02151 · USA

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