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THE ONE-OH-ONE

Summer Edition
 
Updates on a bunch of sickle cell nerds!
Meet the Team
OVERVIEW

We’ve had an exciting couple of months here at Sickle Cell 101, with plenty to celebrate.

 
  • On June 19th, Sickle Cell 101 observed World Sickle Cell Day by talking to people from around the world about what this day means to them. 
  • The judging panel selected the 7th Annual SCAY Awards award recipients and announced on July 9th. SCAY Award recipients shared their incredible stories with us via live stream. 


We also heard from medical experts and specialists in sickle cell disease.

  • Our very own Cassandra Trimnell, Dr. Keith Quirolo, and Dr. Stephen Boateng presented to the Stanford University Premed Program students within the Center of Excellence in Diversity in Medical Education. We discussed the basics of SCD, emerging therapies, and the challenges of today’s healthcare on SCD patients. 
 
PODCAST EPISODE FEATURE:
Sickle Cell + Managing Pain From Home
With COVID-19 cases still prevalent, it’s particularly important for people living with sickle cell disease to avoid unnecessary trips to the hospital.

In our podcast 'Sickle Cell + Managing Pain From Home', adult hematologist Dr. Julie Kanter offers insightful and practical advice on topics including:
  • Why people living with sickle cell disease are considered a “high risk” group
  • When it is (and isn’t) necessary to visit the ER
  • How to safely and correctly use prescribed opioids
  • Simple lifestyle changes can alleviate pain in a crisis
LISTEN
SICKLE CELL EDUCATION
Stanford Center of Excellence in Diversity in Medical Education
On July 27th, Sickle Cell 101 team members Cassandra Trimnell, Dr. Keith Quirolo, and Dr. Stephen Boateng presented at a series of Zoom lectures hosted by Stanford University's Premed Program with the Center of Excellence in Diversity in Medical Education.

Premedical students received an overview of the current treatments, diagnostic measures, emerging therapies and exciting developments.

Additionally, the presented information included: 
  • Information on the current state of healthcare
  • Best practices in treating SCD patients
  • Advice on how to stay informed and contribute to advocacy for those living with sickle cell disease
Alameda Health Systems Emergency Department Presentation
We teamed up with Marsha Treadwell, PhD and Ward Hagar, MD of UCSF Benioff Children’s Hospital Oakland to present to ED residents of Alameda Health Systems. The presentation was part of Alameda Health Systems’ Emergency Department Quality Improvement Collaboration. [Image: The Mercury News]
WORLD SICKLE CELL DAY



Watch Abi’s World Sickle Cell Day Livestream

Interviews from the international sickle cell community!

In 2008, Congo’s First Lady, Antoinette Sassou, launched an initiative that led the UN to recognize sickle cell anemia as a public health problem. As a result, June 19th was established as World Sickle Cell Day, a day the global sickle cell community celebrates annually.

This year we asked individuals living with sickle cell disease, “What does World Sickle Cell Day mean to you?” Responses from around the world showed us that aside from spreading awareness, this day is a reminder of the strength and resilience within the community. 
7th ANNUAL SCAY AWARDS  
Congratulations to all the winners of the 7th Annual SCAY Awards! We’re honored to be able to celebrate the incredible individuals within our community. A huge thank you to this year’s judging panel awards and to everyone who sent in nominations.

2020 SCAY Award Recipients
2020 SCAY Awards Judging Panel

Celebrity Guest Judge: Raymond Reed

 

As an individual living with sickle cell disease himself, Reed’s acting career has seen him tour North America and perform on Broadway as Young Simba in The Lion King before landing a role on Disney Channel’s Just Roll With It. As a sickle cell advocate, Reed aims to inspire others living with SCD to follow their dreams and not let the disease define them.
Community Choice Winners
Congrats the 2020 Community Choice award recipients!
 
       

Community chat with Abi (July 9)

 
Once our SCAY award recipients were announced, Abi live-streamed her conversations with each of the winners. We heard first-hand about their amazing careers, their passion for SCD advocacy, and their ambitions for the future. 

If you missed out on the live stream, you can catch up on Instagram by clicking the link below.
 
WATCH PART 1
 
WATCH PART 2
PARTNERSHIP SPOTLIGHT
We’d like to thank our partners Emmaus Life Sciences for sponsoring the 2020 SCAY Awards. Emmaus Life Sciences’ mission is “to improve the lives of people in need through discovery”.
THANK YOU SPONSORS
Thank you, as always, to our 2020 Sponsors who make all that we do possible. 

COMING UP

 
Keep an eye out for our social media campaign "Know Your Labs". We’ll be empowering you to be more informed when reading your lab results with a focus on what values to look out for as someone living with sickle cell disease.
Copyright © 2020 Sickle Cell 101, All rights reserved.


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