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2018 World Sickle Cell Day Edition
World Sickle Cell Day Checklist     World Sickle Cell Day Pieces 
World Sickle Cell Day Checklist
Do you have plans for World Sickle Cell Day (WSCD), [Tuesday June 19, 2018]? If not, we've got you covered. We've created a checklist of ways to celebrate this WSCD.

[  ] Participate in #RepostForSickleCell

#RepostForSickleCell is a social media campaign hosted by advocacy groups Sickle Cell 101 and Sickle Cell Matters. Its aim is to magnify awareness efforts in a collective manner under one hashtag. You can participate by reposting our awareness posts with facts about sickle cell, or by posting your own content under the hashtag. Our goal is to reach 1,000 posts or reposts under the hashtag.

You can download posts for World Sickle Cell Day at sc101.org/social-media-posts or in a link we’ll provide on Sickle Cell 101's social media platforms.

Sample Posts

[  ] Listen to The Sickle Cell Podcast

The Sickle Cell Podcast is Sickle Cell 101’s very own podcast that covers all things sickle cell related. Hosted by a sickle cell disease warrior and a pharmacist with sickle cell trait, The Sickle Cell Podcast covers various topics such as mental health, blood transfusion, and of course experiences with sickle cell disease and trait. We are launching our pilot episode on World Sickle Cell Day 2018. Be sure to listen to it on iTunes, Anchor FM and other podcast platforms.


[  ] Participate in other campaigns and events

Ladies wear your #boldlipsforsicklecell, while participating in one of many web events taking place on World Sickle Cell Day: Also, check with your local sickle cell advocacy group on events in your area.


[  ] Celebrate and dress the part

It has been said that World Sickle Cell Day is like our 2nd birthday, so be sure to celebrate the best way you know how. Wear your sickle cell gear, sport you #boldlipsforsicklecell, and share your experiences with the disease (especially under the hashtag #repostforsicklecell). The world is listening to us today.
World Sickle Cell Day Pieces
A Patient's Open Letter to the General Public on World Sickle Cell Day
By Cassandra Trimnell
 

In college I raised $52 for the American Cancer Society. I walked miles in my tired, achy body because yes, I believed in furthering cancer research, but also because it was the most relatable cause I could find. I was not a cancer patient, nor did I know anyone affected by it; but I knew cancer patients called the hospital their second home, just like I did. Like me, everyone cares about something outside of themselves; it’s the definition of humanity; it’s the reason we have volunteers who walk miles and passionate advocates who take on the burdens of the victims they fight for.

While these selfless efforts are both admirable and essential, I have found that there is a undeniable shortage of people advocating for sickle cell. In fact, our biggest supporters are those living with sickle cell disease.

Read more...
June 19th is World Sickle Cell Day.
Informational Piece on Sickle Cell Disease and Sickle Cell Trait.
By Stephen Agyenim-Boateng, PharmD

 
On December 22, 2008, the General Assembly of the United Nations (UN) a resolution that recognized sickle cell disease as a global public health concern. This resolution urged the member countries and UN organizations to raise awareness at national and international levels on the 19th of June annually. The first World Sickle Cell Day was celebrated on June 19, 2009.

Sickle cell disease is an inherited disorder that causes red blood cells to become hard, sticky, and look like a C-shaped farm tool called a “sickle’’. Researchers learned that the change in shape was due to a glutamic acid switch to valine at the biochemical level.

Read more...

Warrior Story: My Bone Marrow Transplant Journey
Sponsored by Be The Match


When I think back on my life, back when I lived with sickle cell disease, I remember my first day of kindergarten — closing my eyes to check if I was feeling pain anywhere in my body. I didn’t. I felt completely normal. That would be the last time I would feel normal for a long time.

Another memory that sticks with me was of a nurse giving me a shot, and the surprised look on her face when I didn’t cry or flinch. I told her there was no point in crying over the things you cannot change. I was resigned to living with pain from sickle cell disease for the rest of my life.

In high school, every morning started with turning off my alarm, rolling over and taking a cocktail of pills: hydroxyurea, penicillin and oxycodone.

Read more...

HAPPY WORLD SICKLE CELL DAY!
Copyright © 2018 Sickle Cell 101, All rights reserved.


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