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CDCN Monthly Newsletter - October 19, 2015
Accelerating Research & Treatment for Castleman Disease
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      THE ACCELERATOR: CDCN's Newsletter

Rare Champion of Hope Award
 
David Fajgenbaum, MD, MBA, MSc, Executive Director of the Castleman Disease Collaborative Network (CDCN) and Research Assistant Professor of Medicine in Hematology/Oncology at the University of Pennsylvania, was awarded the RARE Champion of Hope award for science by Global Genes, a global rare disease patient advocacy organization. The honor recognizes Fajgenbaum's efforts to drive forward clinically meaningful research for Castleman Disease as a researcher at Penn and through co-founding and serving as executive director of the Castleman Disease Collaborative Network (CDCN).  The CDCN team members and associates are extremely proud of Fajgenbaum's tremendous efforts spearheading the research  and of his continued work as a physician-scientist, advocate, and patient with idiopathic multicentric Castleman Disease. Click here for more information about the award.  Click here for a beautiful story about Dr. Fajgenbaum's fight.

CDCN Hosting Gala at UPenn's Brand New Medical Center

Please purchase tickets or make a donation if you cannot attend by clicking here.

NYC Friends of a CD Patient Raise Over $13,000 for Research!!

Led by Ryan Dinsmore and a dozen other friends of Dr. Fajgenbaum, approximately 100 New Yorkers came together to raise funding for Castleman disease research.  The event was a huge success, and the funds will be the seed funding towards the CDCN's largest and most important funding campaign yet.  Learn about the CDCN's current research at: www.cdc.org/about-us/current-priorities. Contact info@castlemannetwork.org for more information about how you can put on an event in your area.  Click here to donate to the event.

Important Upcoming Events:

  • Talk by Dr. David Fajgenbaum "Using Business Principles to Cure Disease: A Penn Med/Wharton Alum's Journey to Cure His Disease and Dozens More" hosted by the Wharton Alumni Club of Philadelphia: October 22, 2015 Register Here.
  • Similar talk as above hosted by the Wharton Alumni Club of NYC: November 9, 2015 Register Here.
  • Inaugural CDCN Gala and diagnostic criteria meeting in Philadelphia, PA: November 20-21 2015 (more information above)
  • "Beating Castleman's, Together" Patient and loved one Castleman Disease summit in Orlando, Florida: December 4th, 2015 Click here for more information. Click here to nominate someone for this year's Jim Johnston Castleman Warrior Award.
  • Annual "Accelerating Research & Treatments for CD" physician and researcher meeting during ASH 2015 in Orlando, Florida: December 5th, 2015 Click here for more information.
Email info@castlemannetwork.org for more information about any of the CDCN's upcoming events.

 

Meet a Member of the CDCN Leadership Team:
Mileva Repasky
Mileva Repasky is a member of the Communications team and a mother to one of our youngest Castleman Disease patients, Katie.  After Katie's diagnosis  Mileva began searching for information and research available and came across the CDCN.  She had the pleasure of connecting with David at the first ever Castleman Disease Patient and Loved one Summit and was invited to be a member of the CDCN team.  The ability to connect, work, and communicate regularly with the individuals working to raise awareness, funds, and conduct research on the disease Mileva's daughter is battling has been such a blessing. Mileva wants to do her part to help find a cure for this disease and is extremely passionate about raising awareness and connecting with other patients and loved ones.  As a member of the Communications team she works on the creation of the monthly newsletter and is always striving to reach out to other patients and loved ones in the Castleman disease community. Mileva graduated with a BS in Counseling and Clinical Psychology.  She is currently pursuing her MS at Baylor University, graduating in 2016. Feel free to reach out to Mileva by emailing mileva@castlemannetwork.org. You can also help support Katie's fight against Castleman Disease by donating to Mileva's Warrior Page.
Are you a patient or loved one? Ready to join the fight? It’s easy to become a Castleman Warrior! Please click here to learn more.
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Copyright © 2015 Castleman Disease Collaborative Network - Castleman's Awareness & Research Effort, All rights reserved.


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