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CDCN Monthly Newsletter - January 19, 2016
Accelerating Research & Treatment for Castleman Disease
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      THE ACCELERATOR: CDCN's Newsletter

Historic Weekend for Castleman Disease!
 
During this historic weekend event, the world's 25 top Castleman disease experts congregated to establish the first-ever, international diagnostic criteria for Castleman Disease. This uniform criteria will help doctors identify and  diagnose patients more quickly.  
On Friday evening the 1st annual gala was attended by over 200 supporters including physicians, patients, loved ones, and Philadelphia community members. The evening was a huge success, and through sponsorships and donations the CDCN was able to raise more than the intended goal of $75,000. Click here to watch the 
CDCN Co-founder, Dr. David Fajgenbaum's speech at this historic event. Click here to watch our Guest Speaker: Mileva Repasky, mother of our youngest CD warrior.
 
Donate today to research to help fund a cure for Castleman Disease

CDCN Making National Headlines:        

The CDCN has raised a tremendous amount of awareness for Castleman disease to help advance research into understanding how the disease works.  Check out one of the recent news stories about the CDCN by clicking one of the links below:

Abc 11 News Story

Fox 29 News Story

Philadelphia Inquirer News Story
 

2015 Patient Summit:
Beating Castleman's Together 

 
The second annual Beating Castleman's Together Patients & Loved Ones Summit in Orlando, Florida was another huge success!  Sponsored by Janssen Pharmaceuticals, the event involved patients from around the world, physicians, researchers, loved ones, and members of the CDCN team coming together to connect and learn about their disease, up-to-date research, and ways to join the fight to advance research and treatments.  Kim Driscoll received the 2015 Jim Johnston Castleman Warrior Award for her continued role in helping to find a cure for the disease that took her young daughter's life. We recognized her selfless dedication to the Castleman disease community and her impact on the lives of patients and their families.  Visit Kim's Warrior Page by clicking here
 

Castleman's picked the wrong people to mess with:
These Warriors are Fighting back!

Beating Castleman disease will take a team effort from every patient and loved one. This year, 15 patients and loved ones joined the Castleman Warrior program to help take down this disease.  Together, these warriors were able to raise over $60,000 in support of research, raise awareness in their local communities, and support one another. The Warrior program is a vital aspect of the CDCN and with the continued support of these warriors and their families we hope to make even greater strides in funding and research in 2016.   
 

Are you a patient or loved one? Ready to join the fight? It’s easy to become a Castleman Warrior! Please click here to learn more.
Meet this month's CDCN Team Member of the Month:
Hayley Williamson
Hayley is a member of the CDCN Medical Strategy team and an undergraduate at the University of Pennsylvania, majoring in bioengineering. She recently orchestrated the diagnostic criteria meeting with leading world experts to develop a consensus-based diagnostic criteria for Castleman Disease.  She is passionate about taking an active stance to tackle Castleman disease and build a Castleman community.  She hopes to go to medical school after she completes her undergraduate degree.  Thanks for all that you do, Hayley, and the rest of the CDCN Leadership Team.  Learn more about the CDCN Leadership Team by clicking here.
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Copyright © 2016 Castleman Disease Collaborative Network - Castleman's Awareness & Research Effort, All rights reserved.


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