CDCN Newsletter - July 25, 2017
Accelerating Research & Treatment for Castleman Disease
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July 2017

Watch Dr. David Fajgenbaum's appearance on NBC10 @ Issue!

NBC10's Sunday morning show @ Issue recently featured Dr. Fajgenbaum, Castleman disease patient and Executive Director of the CDCN! Erin Coleman interviewed David to learn about Castleman disease and why he has dedicated his life to finding a cure for this disease. Interviews like this one are helping to raise awareness for CD and the incredible leaps that have been made through CDCN research. We hope you will share this video to keep the awareness raising efforts moving forward!
Click here or below to watch:
Advisory Council members Ryan Hummel and Tony Forte and the Philadelphia Professionals 'FUN'raiser Contribute $7000 to Castleman disease research!

On July 13, local Philadelphians gathered on the Griffin Observatory Deck for a happy hour in honor of the CDCN. With local sponsors supplying food, drinks and the venue, funds raised from ticket sales will go directly to CD research! We could not continue this fight against Castleman disease without the generous support of our community. Thank you to everyone who attended and contributed to this amazing event! 



 Mark Your Calendars!

August 6: Tune in for NBC's The TODAY Show to watch a special on Dr. David Fajgenbaum and the CDCN! Tentatively scheduled to air Sunday, August 6.

August 10: Deadline for Patient Summit Travel Grant applications and for nominations for the 2017 Castleman Warrior Awards.
August 14: Special rate at the Sheraton Hotel for Patient Summit attendees ends. 
September 4: Deadline to register for Patient Summit. 
September 15-16: Patient Summit. See details above!

November, 2017: Quest for a Cure Gala. Event details coming soon!
ACCELERATE Welcomes Erin and Faizaan!
The CDCN is delighted to announce the addition of two full-time Data Specialists for the ACCELERATE patient registry at the University of Pennsylvania. ACCELERATE is the first-ever global patient registry and natural history study of Castleman disease. Prior to working for the UPENN ACCELERATE research team, Erin Napier received a bachelor’s in Mathematics from Georgetown University in 2017. Faizaan Akhter received a bachelor’s from Drexel University in biomedical engineering, and recently completed a pre-medical, post-baccalaureate program at the University of Pennsylvania. ACCELERATE allows patients to contribute their medical data to help answer the unknowns of Castleman disease. With Erin and Faizaan focused on ACCELERATE, we will improve understanding of Castleman disease even more quickly!

To find out more or to register for the ACCELERATE Patient Registry, please visit:
Click here to meet the full CDCN leadership team!
Buy your CDCN Swag today!
Sizes: Kids, Womens and Mens XS through XL
Price: $26 - $30 each

$10-12 of each purchase donated directly to support the CDCN's life-saving research.

here to purchase yours today!

Just joined the CDCN? Learn about how the CDCN got started, the progress we've made since 2012 and our plans for 2017 by checking out our new Community Update here!


Don't forget to follow us on Instagram (@curecastleman), Facebook (@CDCN2), Twitter (@curecastleman) and LinkedIn!


We have made incredible progress, but have life saving work that needs funding. Please donate here! With your support we can beat Castleman Disease for patients like Katie around the world!

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