CDCN Monthly Newsletter - October 22, 2014
Accelerating Research & Treatment for Castleman Disease
View this email in your browser


October 2014

CDCN Invites All Castleman Disease Physicians & Researchers Worldwide to the 3rd Annual CDCN Meeting at ASH 2014 - December 6, 2014, 6-9PM

The Castleman Disease Collaborative Network (CDCN) is bringing together physicians and researchers from around the world for the third time to discuss recent Castleman disease (CD) breakthroughs, determine priorities for the field, and continue to execute on our plan for curing CD! The meeting will be held during the American Society of Hematology (ASH) meeting in San Francisco on December 6, 2014. Click here for registration/more info and/or email

Patients, Loved Ones, and Physicians are Invited to the 1st “Beating Castleman’s, Together,” Patients & Loved Ones Summit in San Francisco - December 5-6, 2014

The CDCN, CARE, and International Castleman’s Disease Organization (ICDO) are pleased to invite you to our first Patients & Loved Ones Summit in San Francisco! The Summit will coincide with the 2014 American Society of Hematology (ASH) meeting, so that physicians will be able to attend as well.

Many of you have connected with one another in our Facebook groups and on the Castleman disease patient forum—now is the time to meet each other in person and to learn more about your disease, current research, and ways you can join the fight to advance research and treatments! We are hoping to be able to provide financial assistance to those patients with significant financial need, who would not be able to attend otherwise. 
Click here for more information and to register for the Summit.
"I am a Castleman Warrior"

Kim Anderson Driscoll coined the term "Castleman Warrior" after losing her daughter, Elyse, to Castleman disease. “To me, warriors are fearless, brave, and an ultimate sign of strength! My daughter is my warrior. She will forever be my STRONG! She is the reason that I will fight for research, awareness, and most importantly, a CURE! I have high hopes that as a team, we will bring Castleman disease down!”

The CDCN has created the Castleman Warrior program to give other Warriors the chance to fight back too by creating a page, holding fundraising events, and raising awareness! We're calling all YOU Warriors from around the world to share your stories and photos on our website and newsletter. Email us at:
Calling All Researchers: CDCN releases RFP for High-Impact Research Grants

The CDCN has recently released a Request for Proposal (RFP) for Seed Grant funding to truly advance our understanding of the disease and improve patient care. We gave a $10,000 grant to Dr. Frits van Rhee at UAMS in January and are ready to spur more research! Visit the following link for more information and the RFP:

CDCN's Proposed Coding/Classification System Could Help to Accelerate Research, Patient Care, and Better Understanding of the Disease

Drs. David Fajgenbaum and Frits van Rhee proposed a new classification system for Castleman disease to the CDC’s International Classification of Diseases (ICD-10) subcommittee on behalf of the CDCN Scientific Advisory Board. Read more about the importance of this new coding system here.
We need your help to get it approved!
The committee is accepting letters from the public in support of proposals. Contact us if you're interested in writing an email in support.
Copyright © 2014 Castleman Disease Collaborative Network - Castleman's Awareness & Research Effort, All rights reserved.

unsubscribe from this list    update subscription preferences